Wednesday, December 31, 2014
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Tuesday, December 30, 2014
Just very annoyed tonight.
Wednesday, December 17, 2014
I want to say THANK YOU from the bottom of my heart to the family of the donor that Dalton received his lungs from. What a beautiful gift. So, wherever you are, thank you. Because of organ donation and the act of kindness, my husband is still here. I know the holidays are going to be hard for you. It's only been a month since your loved one passed away. We are praying for you and have prayed for you all everyday since Nov. 16, (when Dalton actually received the call but received his transplant on the 17th).
I meant to write a longer post but this is all I got at 4 am. Thank you God for blessing my husband with such an amazing gift and please keep your arms wrapper around his donor family. God Bless!
Thursday, December 4, 2014
Wednesday, December 3, 2014
Since her passing, I have looked at her picture everyday. Her picture stays in my wallet and I manage to take a glance each time it opens. I even got a tattoo of an S in tribute to her (along with her brothers).
Going through a lung transplant isn't easy. I'm not going to sugar coat it at all. First off, actually being sick enough to go through the transplant is a journey on it's own, but then there are so many tests that have to be performed to decide whether they want to list you. And I will tell you, the answer isn't always yes. In those cases, you are sent home to live the rest of your life in comfort whether it be days, weeks, maybe months. In other cases you may be sent to another facility to see if they will accept you and put you on their list. When that's all done, the waiting game begins...
I started this blog talking about my baby angel sister-in-law Samantha. You're probably wondering how all of it ties together. Tonight as I was about to lay my head down on my pillow (after a long, tiring, sick day) I raised up my pillowcase. There was a piece of fuzz on my sheet. This piece of fuzz wasn't just any piece of fuzz, it was very important. It was a sign from Samantha, telling me that she's taking care of Dalton and I. The fuzz was in the shape of a butterfly. It wasn't like I had to squint hard like you do sometimes to see images in the clouds. It was just right there. A butterfly piece of fuzz.
What a nice way to end my day. Thank you my sweet sister. You are forever in my heart. I love and miss you so very very much.
Thursday, November 27, 2014
Sunday, November 23, 2014
His surgery started early on November 17th and lasted until 5:00 PM. There were a few complications, but they got settled. He now has a trach though and will have that for a little bit until he gets off of the vent and can breathe on his own.
I'm so happy with how he's been improving and so are the doctors. I give all my thanks to the God above. Without him nothing is possible.
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Thursday, October 30, 2014
Monday, October 13, 2014
Thursday, October 2, 2014
All we need are prayers. No amount of money, no size of house, and no type of car will ever be more precious to me than the love I have for my husband. Please please pray. Please pray for peace. Pray for healing. Don't pray that someone dies so that he can get his lungs, but pray that the one God chooses to take home with him makes the choice to donate their organs. I have faith that their coming and for Dalton's sake, I hope they do. Tears are falling as I type this as they have been doing most of my waking hours the past few days. We need a miracle. -Katie
Wednesday, October 1, 2014
Been a rough emotional day here. It's hard enough having one end stage CF patients, let alone two. It's hard to focus on me when all I care about and want to focus on is Dalton. Please pray for us. For peace, so that our minds will stop racing. For wisdom, to make all the right choices when it comes to both of our health. For time, the most precious thing of all. We need more time. More time together. More time of loving. More time for cuddling. More time for being each other's best friend. More time for laughter. We refuse to stop fighting for ourselves and for one another. Please pray. -Katie
Thursday, September 25, 2014
Friday, September 5, 2014
We have the best support system that I know and people are always asking what they can do for us. I finally know what everyone that wants to help can do.
First, we need prayers. A lot of them. If you don't believe in God, think positive thoughts, send good vibes, we will take anything!
The other thing you can do is go to www.organdonor.gov and sign up to be an organ donor. You can't take your lungs and other body parts with you, so why not give Dalton and I the chance at life?! I have attached a video to show how hard things can be sometimes. Although we are just laying there, breathing is so hard. It's crazy to have to think about breathing and have to concentrate on it instead of it coming naturally. Thank you for all of your support, love and prayers like always.
Also, if you could please share this, it would mean so much to us.. The more people that pray the better. I just keep trying to stay positive and keep trying to keep the mindset that God IS in control...
(This is our wedding song) -Katie
Wednesday, September 3, 2014
Tuesday, September 2, 2014
Wednesday, August 27, 2014
Monday, August 25, 2014
I am obsessed with the cafeterias fish sandwiches. They are breaded and have shredded lettuce and they taste just like a good hometown, country, firehouse fish sandwich. If yall know me, you know I love a good fish fry so when I come in, I pretty much hit up the cafeteria as much as possible (especially at nights).
Eventually it adds up $$$ to keep on buying food from the cafeteria especially when I get trays delivered to my room for free. Tonight I decided I was going to take a stand! I want my fish sandwich tonight and I am not paying for it! That sounds horrible of me but this hospital gets enough money from my insurance, they don't need my money too! So I talked to my nurse and she offered to call the dietary office for me to see if I could get one!
I was SO happy! I was like yessss finally, saving my $4 AND getting my fish sandwich. What happened next is crazy.... The dietary supervisor is actually making my doctor WRITE and FAX a prescription for me to have a fish sandwich..... That's right, I was prescribed a fish sandwich, official signature and everything.. How crazy! I just have to laugh! If I didn't laugh I'd go crazy in this place!! Love y'all! -Katie
Sunday, August 24, 2014
|Dalton and I waiting in the ER|
Thursday, August 14, 2014
Friday, August 8, 2014
Saturday, July 26, 2014
Thursday, July 17, 2014
Monday, July 14, 2014
Sunday, June 8, 2014
Sunday, June 1, 2014
Tuesday, May 13, 2014
Wednesday, April 30, 2014
Tuesday, April 29, 2014
Thursday, April 24, 2014
Friday, April 18, 2014
Tuesday, April 15, 2014
Friday, April 11, 2014
Thursday, April 10, 2014
The past few days have been a whirlwind. I guess it started out Monday when Daltons heart rate when to 180 and wouldn't come down. So they took him to the ICU to monitor him and make sure he was okay. While he was down there they also put in a nerve block. A nerve block is basically they cut off the nerve endings in your spine to a certain place that is giving you pain. In this case, Dalton has 3 fractured ribs from coughing and while he is still coughing, it gives him a lot of pain. So this nerve block, which is like a fishing line that cuts off the nerve for a while, feeds his medicine to the site and supposedly makes it easier on him. He finally got back up to the regular floor last night, which I was so happy about! He is doing better and his heart rate is staying down and in normal range, well for him anyway.
Daltons dad and grandma have also came up here to stay with us and hopefully take us home. We are really hoping to go home soon. They are bringing us lunch today and I think Popeyes is on the menu! So we are both excited that we won't be eating nasty hospital food today. It gets really old, really fast!
I've been doing okay. Really having some problems with anxiety lately, Dalton has too. I think we just need to get out of here and that will work itself out. Being in the hospital takes a lot out of someone.
Well, there isn't much else to report.. Dalton wanted me to throw in a picture so thanks for reading and for loving us and supporting us! It means the world to the both of us. Also, please pray for Timmy Dotson who isn't doing too well, and my aunt Karen who is having surgery today and has been in the hospital a long time. Peace and Love. -Katie
Thursday, April 3, 2014
Sunday, March 30, 2014
Saturday, March 29, 2014
I really want a job! I keep looking into the sell things from home deals. I just feel like it's a scam and I can't imagine spending money to start something and then never even make my money back. So, I have been debating on that a lot. Another problem with those things is that there are SO many people who sell things that it is hard to find people to buy from you. I'm really not sure if it would be worth it to sell anything or not. Any input? I just really want something to do to make money. I am tired of getting donations and not doing anything to get them. I hate donations honestly. That is mainly why I started making bracelets, got t-shirts, etc. So yeah.. I have always been independent when it comes to that sort of thing so being in this predicament is not fun at all.
I am going to see Dalton tomorrow. He said he is starting to feel a bit better. Bad news is that his score is back down to 41. They messed it up the other day and so it went back down. :( boo. I wish he would get his lungs soon. I am ready to see him healthy <3
Monday, March 24, 2014
If you would like to send Dalton a card go to https://ecards.upmc.com/
Click on the card you would like
Under the hospital tab click on UPMC Presbyterian and you can leave the room number blank.. Just be sure to include his name!!
Also, to make a comment on my blog, go to the post you'd like to comment on. At the end of the post it will say NO COMMENTS or 1 COMMENT, ETC. Click on that and you will be able to make your comment.
Sunday, March 23, 2014
Friday, March 21, 2014
Wednesday, March 12, 2014
Thursday, March 6, 2014
Sunday, March 2, 2014
Sunday, February 9, 2014
Friday, February 7, 2014
Wednesday, February 5, 2014
Friday, January 31, 2014
Thursday, January 30, 2014
Sunday, January 26, 2014
Saturday, January 25, 2014
Friday, January 24, 2014
Sunday, January 19, 2014
On the left is Bo. His birthday is Nov. 2, 2010. He was a rescue puppy. We got him from a pet store called Petland in Missouri. When they received him, they said that he was malnourished, had worms, and was just a very sick puppy. Nobody had ever properly taken care of him... When we went to the pet store we were actually going to get his brother because his brother was more playful and Bo just sat there right beside Daltons leg and wouldn't really move. He was quite shy, and a little anxious. But, Dalton wanted Bo so that's the one we got. I'm not really sure where the name Bo came from either but we had it picked out before we left the store. We took Bo up to the counter to pay for him (and all his treats). We sat him up on the counter and that's where it all started, he peed all over the counter. Little did we know that would be the beginning of what I like to call the disaster toddler puppy!
On the right is Marley. She is the first born and her birthday is Dec. 22 2009. Dalton and I moved into our first apartment together at the beginning of 2010 and of course we wanted to have a little family. We went into Petland thinking we would get a gerbil or a hamster. Those things are easy enough to take care of. If we want to play with it, get it out of its cage and put it in the ball and watch it roll across the floor. Easy, peasy. Well, we walked into the pet store and after playing with just about every hamster and every gerbil, I was bored. None of them wanted to play and they all hid from my ginormous hand every time that I reached down into their cage! So I just looked at Dalton and said, 'let's just look at the puppies'. They were all SO cute! I wanted to take them all home. Every cage I walked past the price tag seemed to increase, $600, $700, $1000. I am sorry, I love dogs as much as the next girl but there is no way I am paying that much. So we went up to the pet store employee and asked, 'what is your cheapest dog?' That may seem funny to some but we were serious. The guy pointed over to a cage with a puppy bulldog and a puppy cock-a-poo (which is Marley). The bulldog was laying in the cage trying his very best to sleep while Marley was hopping up and down, wall to wall, trying to play with him! When we said we will see her and they took her out of the cage it was like we saw the bulldog take a sigh of relief! After a while of playing with her we decided we would take her! Come to find out she was next on the chopping block too.. Ya know, they can't keep those puppies forever. Sad but true. So we got Marley and all of her treats and toys and took her home. I will never forget her ride home. She had an Easter scarf on and it was raining. She sat in my lap in the front seat and shivered and hugged my arm all the way home.
Stay tuned for my next puppy blog where I tell you all about the adventures of Bo and Marley!