So, it's Friday, Jan. 10th! I haven't wrote anything in quite a few days so I will just do a little update! We had an appointment on Wednesday. Dalton's PFTs were 17% and he weighed 107. So he lost a couple pounds but wasn't too bad. He is staying on IVs for another week just because he wants to and other than that all is well. My PFTs were 15% and I weighed 90 pounds. I took myself off of IVs. I am done with them for a while. They don't seem to be doing anything anyway!
Nothing else is going on this way. We had a calm Christmas and New Year. Our next appointment is Feb. 5th. I will update again before that though.