Saturday, March 30, 2013
Friday, March 29, 2013
Thursday, March 28, 2013
With transplant it is required that you bring a support system with you to the appointments. If only one of us was getting transplanted then obviously the support system would be the spouse but since BOTH of us are trying to get transplanted, it has to be someone else. So, tomorrow, Dalton's dad and grandma Prager are going to be coming in to visit and stay with us and go to the appointments, my mom is going with us, and Dalton's mom is flying to Pittsburgh on Sunday. I really wanted my dad to go but he had to work. He of course, will be taking the puppies though!
Another thing is that we have the order in for shirts! I can't wait until you see them! They rock! The are a combined effort from Dalton and I, so they are very special to me. I really hope they sell well. I will let you know when you can order one. I also finally have my jewelry that I have been making at It's A Girl Thing Boutique in Flemingsburg and my mom has been making necklaces. So, if you are local, feel free to go in there and browse. She has tons of other stuff too, it is just a really awesome store.
Dalton and I are still on IV antibiotics and will be until tomorrow, after that we are done. I am so thankful that we won't be on them next week during our hectic schedule!
Be sure to check in everyday next week because we will definitely have a lot to blog about! Thank you to everyone who has shown so much support and LOVE. -Katie
Tuesday, March 26, 2013
Katie and I were sent home from the hospital on constant oxygen, so we each have an oxygen machine here at the house along with thirty feet of tubing apiece. Needless to say, it's taking some getting use to. Luckily we're both quick learners! Also, Pittsburgh contacted us about some dates to choose from for evaluations for Katie and I both. Stepping forward everyday. -Dalton
Saturday, March 23, 2013
Friday, March 22, 2013
An interesting thought crossed my mind today. If you checkmark the Organ Donor box on your licence, watch how you treat yourself. If you want to donate your organs, that is a wonderful thing. But dont bother checking that box if you smoke, even if you only do it "socially". Or maybe cut back on drinking if you like to party a lot. It's scary enough knowing that someone out there is using the lungs I may eventually get. I would want nothing more than to assume they're in prime condition, but I'm no fool. Just remember, if you plan on being an organ donor, someone's life will depend on how you treat yourself. That person might be me. -Dalton
Thursday, March 21, 2013
Tuesday, March 19, 2013
Monday, March 18, 2013
Sunday, March 17, 2013
The fresh fruit that the cafeteria has here at the hospital is surprisingly delicious. I've been eating a lot of cantaloupe, honeydew, pineapple, and grapes the last few days. All of a sudden I started craving fresh fruit all the time. Also, my stomach issue is getting resolved, so I can get back to stuffing my face. My three week mark is coming up, which means discharge papers! I do believe I have gotten all the good I can from three weeks here. Now I need to concentrate on Katie.
Saturday, March 16, 2013
Dalton has been having stomach issues. He has ate so much that it's pushing up against his lungs so he can't breathe as well. I think he's NPO (nothing by mouth) until further notice. His o2 sats remain at 90-91 on 2 liters oxygen.
I have been having some oxygen problems. I am currently on 6 liters of oxygen and my o2 sats are 90-91. When I take my oxygen off they dip down to low 60's.
Seems like you can be fine one day and the next knocking on deaths door. -Katie
Friday, March 15, 2013
Wednesday, March 13, 2013
Anyway, what my post was originally about was our Oxygen saturations. First of all, oxygen saturation is a measure of how much oxygen the blood is carrying as a percentage of the maximum it could carry.Your oxygen saturation (o2 sats) usually range from about 98-100%. Even with CF mine and Daltons have always been 96-100%. In the last few weeks we both have dropped and hovered to around 90% and just these past couple of weeks we have dropped even more. Without oxygen, my o2 sats are around 83% and Dalton is in the same boat. This is a very over whelming feeling for me. I am now on oxygen almost all of the time. I do breathing treatments four times a day and it doesn't make it any better.
We need all the prayers we can get please. That is all I ask of you. -Katie
Monday, March 11, 2013
My discharge day is almost at hand, and I'm glad. I've been here long enough. I need some fresh air! Unfortunately, Katie is not ready to go yet. Her infection is still running rampant and her anxiety is stirring. After a little time here, however, I think she'll be feeling better.
I cannot wait to see Bo and Marley, but I especially cannot wait to cook again! I miss cooking and eating gourmet food with Katie SO MUCH. When she gets out, it's going to be Hells Kitchen at the Prager household! -Dalton
Over the weekend I had several anxiety attacks. So I was treated with oral Ativan. I got worse and so I was then treated with IV Ativan. It was a horrible experience. I started throwing up a lot of blood and my blood pressure was really low, I had low O2 Sats, and my heart rate was high. I was taken to the step-down unit of the ICU. I honestly can't remember anything from this past weekend or today. And I honestly really don't want to.
Please pray that Dalton gets home soon. I know he misses home. <3-Katie
Friday, March 8, 2013
Oh also, big news... I talked to Pittsburgh today. We are still trying to get insurance information straightened out but it's something.. Please keep praying. -Katie
I hate these times because Dalton is usually sound asleep. I glance over at his chest to make sure it is still moving up and down. I listen to his shallow breaths and pray that Pittsburgh calls us with an evaluation appointment soon. I hate laying there by myself,
for something that might never happen.
Thursday, March 7, 2013
I am up here with Dalton. He should be getting out of the hospital tomorrow. I have started making jewelry to raise money for our transplants. We will have to relocate to Pittsburgh so we will be staying in a hotel for no telling how long before and then we will have to stay there 3 months after transplant. Neither Dalton or I work anymore. Trust me, it gets very boring and we would if we could. So instead of bringing in money from a job, we will hopefully be able to bring in a little money this way. If anyone has any ideas to raise money, we would love to hear of things you have done in the past! Feel free to comment! We love reading them! - Katie
Wednesday, March 6, 2013
run for miles.
play in the rain.
I know Dalton is ready for this journey and I am too. I am more than ready. We have been married on paper for almost two years now. But, soon enough we will be able to act like it. We don't go out a lot, we don't do a lot of fun dates. We are mainly homebodies because we just get too tired. Soon enough, we will be able to do-
whatever we want.
whenever we want.
Give us time. We will get there. -Katie
Tuesday, March 5, 2013
When the doctors made their rounds, they came in and told me that my latest sputum sample grew Atypical Mycobacterium along with the usual infections. They will have to test my sputum two more times. They said if it grows all three times, then the infection is positive. If it only grows once or twice, it is not something that should cause concern. Needless to say, I'm crossing everything I got to keep this bacteria out of my system. With the transplant evaluation coming up, the last thing I need is a new breed of infection.
The social worker gave me the phone number for the Pittsburgh Transplant Center today. Luckily, it is up to Katie and I to initiate communication with them, so we can put the pedal to the medal and work it on our own schedule. That would be very convenient, because Katie and I are wanting to do a little bit of sightseeing in Pittsburgh. There's no reason we can't have fun while being fitted for two shiny new sets of lungs. Katie and I can not wait! You just gotta LOVE that new organ smell!
I haven't been up to visit Dalton since Saturday night. I haven't been feeling well and have been on 2 liters of oxygen with my O2 sats still lower than normal. I emailed our doctor and she started me on 3 different oral antibiotics so hopefully things will start to get better soon and I will be able to make it back up to see Dalton later today or tomorrow. I hate not being able to be up there with him, but I know from past experience when he isn't able to be there, I am okay with it so I believe he is okay.
Please pray that Dalton gets to come home soon. I will update when I find out more information.-Katie
Sunday, March 3, 2013
As Dalton said in the previous post, we didn't think it would happen this soon and we definitely didn't think it would happen at the same time. But I feel that we are blessed that we are going through this together. We will know what each other is feeling and I think it will be good for coping and dealing with this.
I just really want to welcome you on this journey with us and thank you for all your love and support! I can't wait to share our story.. -Katie