Saturday, July 26, 2014


I can't sleep. I've been watching tv all night. We are back on IV antibiotics. Our next appointment is aug 6th. I didn't plan on writing a whole lot, just a small update. I'm ready to LIVE my life, not just survive it.. -Katie

Thursday, July 17, 2014

Work It

30 minutes of vest this morning and breathing treatments done. Also going back to pulmonary rehab next week. I will not let CF do anymore damage. I'm done! -Katie

Monday, July 14, 2014

Long time

It's been a long time since I've written an update. Here's what's going on as of lately. 
Dalton's mom had a baby so we have a new baby brother! His name is Samuel and he is precious!! 
We have made a few trips to the doctor in Pittsburgh, been on ivs, rearranged meds, and everything is idle for now in that sense. No big calls or anything. 
Learning to adapt to this life as we call it a little at a time. I hate everything that waiting for a transplant has taken away for me, including people. 
That's it for now. No big news. No news is good news in my book. 
Oh I started selling Avon! If you'd like to order from me, you can do so at