*Insert Disease Name Here*

So for a while now I guess we have been on the path to the point of where we currently are. The point where it actually comes out of a doctor or nurses mouth that really hits you. This can't be my life, is it? I'm talking about when someone tells you that you have 'end stage -insert disease name here-'. In the case for us, we are at end stage Cystic Fibrosis. It is even weird to type out. I never thought I would come to the point where those words would become my everyday life, but they are. End stage Cystic Fibrosis. You know what that means? That doesn't mean its the end, it means that it's time to work even harder to see the next day.