I had an appointment today. Not bad but not awesome. PFTs down a little, not sure why. Continue on oral antibiotics. I am getting the Tobi podhaler!!! Which is a new way of taking a medicine that normally takes about 10-15 minutes inhaled and it takes it down to about 30 seconds. Weight stable. Going to switch out my feeding tube down to a small version called a Mickey button in a couple of weeks. Still active on the transplant list.
Both just keep on keeping on. Thanks for your love and prayers! -Katie