I'm feeling really sick. I'm worse than I was last week. My breathing is so bad I literally want to crawl the 10 feet to the bathroom. Bipap is being used during the day and settings need to be readjusted. My blood levels bounce around and stay out of whack. Kidneys are problematic. I've never ever felt this bad before. I keep reminding myself that good things are coming! My transplant is gonna get here and I'm gonna LIVE not just survive. I have more mental strength than I will ever have physically! I'd give anything to go home, even the doctors would like for me to go home because it'd be good for my mind but I just can't make it. I really want my family to come to me. More than anything.
Good news update: I've been accepted by insurance and UPMC to be reevaluated!!!!! Still not out of the woods yes but it's actually starting to happen. I can't believe it!!!! Please God let this process work out. I need it more than anything. I should be getting transferred by air within the next few days.
I love you guys
My new port!!