Growing Up

I am so glad that my parents never sheltered me while I was growing up. In fact, I didn't really tell anyone I had CF unless they asked or needed to know and well now that it's obvious something is wrong (via the oxygen tank) it's hard to hide. Some parents shield their Cf kids from things and it's a shame. I lived a normal life and still do! I did what I

wanted in regards to sports, hanging out with friends, etc. I truly feel sorry for the children whose parents pity them and use Cf as a crutch. If anything my mom and dad taught me to be a stronger person because of it and never let it get me down. I will admit, and this is hard for me, there was a time when I was really sad because of how sick I was getting and I was living out of state and nowhere near my parents and I was a mess. Now that I'm home I spend my time trying to be closer with my parents and let them know how much I truly appreciate them. My mom and dad have always been my two strongest supporters and I can honestly say that without their push I wouldn't be half the person I am today. They are amazing and I'm so blessed that they didn't pity me or allow me to feel sick. I am who I am because of them and wouldn't change a thing. I Love you mom and dad! -Katie, Kate, Sissy, Princess

Just Waiting

The one thing I absolutely hate about social media is seeing how people my age, the people I grew up with are out ENJOYING their 20's. Yes, I'm jealous. Yes, I'm envious. Of course there's nothing I can do about it and allowing myself to feel sorry for myself is the last thing I'm going to do. I'm missing out on 'the best years of my life' and I'm not gonna sugar coat it, it sucks. It's so hard watching people go out and have fun while I sit at home.. But don't feel sorry for me. One day soon I'll have my new lungs. I'll be able to start 'the best years of my life' when my new life starts and that begins with new lungs! I can't wait to take that first deep breath! No oxygen, just the air around me! And after that, Dalton and I will definitely have the best years of our lives filled with things we can't even do in our wildest dreams. That's a promise. -Katie

Oops!

So I promised a post last night and I didn't get there! But here I am tonight. Better late than never! 

So I met with the guy about our TSHIRTS and I'm so excited about them! Not sure when they will be done but we should get a few here within the next week. I walked over a half mile tonight! It is so hard to get back in that habit and my lung is killing me right now but for someone on oxygen that is a huge step!!! I'm so proud of myself! Marley and Bo have been keeping me busy! They love to play every morning around 9 am! :) Lots of love! And thanks for reading! -Katie

Daltons Day!

In light of us being sick, I decided that I wanted to celebrate being out of the hospital and just give Dalton a day in which we could do whatever he wanted. Nothing was off limits! So, we went to Lexington and ate lunch at Olive Garden and then went to a gun shop! He had a lot of fun but we were both so tired after! We got home around 4 and have been laying around ever since! He is now eating dinner from Lees. That boy eats more Lees than anyone I know and I really don't like the smell of it! But, whatever he wants! Here are a few pictures! We are going to go through pictures tonight and watch movies. I love him! -Katie

Oxygen

If you have any questions, feel free to email me at pragercf@gmail.com. I would love to answer any questions or hear your thoughts on my video!! -Katie

:)

Just a Quick Update

Just a quickie to update you guys about us! Love to all you guys, thanks for reading!!! If you read 'LIKE' our page on facebook!!

https://www.facebook.com/dktransplant

-Katie

Whats Been Goin On

I figured I would give everyone an update about what has been going on. We haven't touched base on here in a while, so I figured before anything else happens that I may need to write about, this would be the best time to get caught up.
The past few days have been a whirlwind. I guess it started out Monday when Daltons heart rate when to 180 and wouldn't come down. So they took him to the ICU to monitor him and make sure he was okay. While he was down there they also put in a nerve block. A nerve block is basically they cut off the nerve endings in your spine to a certain place that is giving you pain. In this case, Dalton has 3 fractured ribs from coughing and while he is still coughing, it gives him a lot of pain. So this nerve block, which is like a fishing line that cuts off the nerve for a while, feeds his medicine to the site and supposedly makes it easier on him. He finally got back up to the regular floor last night, which I was so happy about! He is doing better and his heart rate is staying down and in normal range, well for him anyway.
Daltons dad and grandma have also came up here to stay with us and hopefully take us home. We are really hoping to go home soon. They are bringing us lunch today and I think Popeyes is on the menu! So we are both excited that we won't be eating nasty hospital food today. It gets really old, really fast!
I've been doing okay. Really having some problems with anxiety lately, Dalton has too. I think we just need to get out of here and that will work itself out. Being in the hospital takes a lot out of someone.
Well, there isn't much else to report.. Dalton wanted me to throw in a picture so thanks for reading and for loving us and supporting us! It means the world to the both of us. Also, please pray for Timmy Dotson who isn't doing too well, and my aunt Karen who is having surgery today and has been in the hospital a long time. Peace and Love. -Katie

Quick Note

If anyone has called us, text us, facebooked us, etc. We know you're there and you care even if we haven't responded. Not the best past few days. Thanks for understanding. I'll try to do a post tonight. - Katie

Just Wanted to Say HI!