Monday, March 16, 2015
What a Monday!!!
Wow! That's all I can say! I am in tears over how many people who have shared my blog post from this morning and mine and Daltons facebook page today. I have heard from people who I haven't heard from in years. I just honestly have no words but thank you so so much for spreading the word! -Katie
New News
It's 9:33 am, Monday, March 16th. I have been here for 16 days and there is no end in sight. At first, the doctors were optimistic about me getting a transplant and me getting transferred to Pittsburgh so easily. Now, my doctors are saying that I need to contact my state representative and go to media about nobody wanting to pay for my transplant. I've become the dreaded dollar sign and to anyone that matters to me, I don't matter to them.
There has been a lot done to try to get me my transplant. I'm not going to give up on the idea because it's too easy to dream about healthy lungs. I often wonder how Dalton feels. I wonder what on Earth it feels like to take a deep, easy breath. The truth is that I may never know.
When a doctor comes in and tells you to take your 'story' to the media, it's never a good sign. I guess this is where you come in? Share my story. Share my blog. Share my facebook page. With the help of my mom and cousin have written up something to hopefully get my 'story' out there. I call it a 'story' because to everyone it IS just another news story. To me, it's my life.
Stay tuned to learn how you can help get my story out into the public. Information will become available today and maybe I can finally get the second chance at life that I feel like I deserve. I hope I deserve. -Katie
This link is up and working. Please don't feel like you have to donate. I just want really want prayers and attention to the insurance to make them pay.
http://www.youcaring.com/medical-fundraiser/help-katie-breathe-/71290
There has been a lot done to try to get me my transplant. I'm not going to give up on the idea because it's too easy to dream about healthy lungs. I often wonder how Dalton feels. I wonder what on Earth it feels like to take a deep, easy breath. The truth is that I may never know.
When a doctor comes in and tells you to take your 'story' to the media, it's never a good sign. I guess this is where you come in? Share my story. Share my blog. Share my facebook page. With the help of my mom and cousin have written up something to hopefully get my 'story' out there. I call it a 'story' because to everyone it IS just another news story. To me, it's my life.
Stay tuned to learn how you can help get my story out into the public. Information will become available today and maybe I can finally get the second chance at life that I feel like I deserve. I hope I deserve. -Katie
This link is up and working. Please don't feel like you have to donate. I just want really want prayers and attention to the insurance to make them pay.
http://www.youcaring.com/medical-fundraiser/help-katie-breathe-/71290
Thursday, March 12, 2015
Bad Friend
I'm not sure but I don't think I'm that good of a friend. I get upset because I feel like I don't have any friends but maybe it's me. In fact, it is me. I'm not a very good friend at all. I guess I'm a homebody and am not good at making friends which leads me to look really stupid in social situations. I don't know, this is 4 am rambling.
Things like this go through my mind all of the time.
Things like this go through my mind all of the time.
Thursday, March 5, 2015
#Color4Kids Project
My name is Katie, I'm 24 and I have Cystic Fibrosis. My husband who also suffers from CF received his life-saving double lung transplant in November (go to our facebook page to read more about us). I am starting a new project in hopes of bringing some smiles to children that have been diagnosed with Cystic Fibrosis or other diseases all around the US one page at a time! My project is called #Color4Kids.
How it works: You (the parent or guardian) private message me your address and your child's name and age on facebook or through email. In turn, I will color them a picture and send it to them in the mail with a tiny message of hope and love. Something as simple as coloring a picture and a few words of encouragement can make someone's day just a little bit better. When your child receives their picture, please post it on facebook, Instagram, or any other social media with the hashtag #Color4Kids. It would be awesome if you took a picture of your child holding their picture but understand if you would like to keep your childs face off of the Internet.
If you have a child who is battling any kind of illmess, please message me! I don't share personal information with anyone and if there are healthy siblings in the house be sure to include their names and ages as well!
Katie Prager
www.facebook.com/dktransplant (Our Journey)
Instagram: @kprager90
Email: kprager90@gmail.com
How it works: You (the parent or guardian) private message me your address and your child's name and age on facebook or through email. In turn, I will color them a picture and send it to them in the mail with a tiny message of hope and love. Something as simple as coloring a picture and a few words of encouragement can make someone's day just a little bit better. When your child receives their picture, please post it on facebook, Instagram, or any other social media with the hashtag #Color4Kids. It would be awesome if you took a picture of your child holding their picture but understand if you would like to keep your childs face off of the Internet.
If you have a child who is battling any kind of illmess, please message me! I don't share personal information with anyone and if there are healthy siblings in the house be sure to include their names and ages as well!
Katie Prager
www.facebook.com/dktransplant (Our Journey)
Instagram: @kprager90
Email: kprager90@gmail.com
Subscribe to:
Posts (Atom)