Work It

30 minutes of vest this morning and breathing treatments done. Also going back to pulmonary rehab next week. I will not let CF do anymore damage. I'm done! -Katie

Long time

It's been a long time since I've written an update. Here's what's going on as of lately. 

Dalton's mom had a baby so we have a new baby brother! His name is Samuel and he is precious!! 

We have made a few trips to the doctor in Pittsburgh, been on ivs, rearranged meds, and everything is idle for now in that sense. No big calls or anything. 

Learning to adapt to this life as we call it a little at a time. I hate everything that waiting for a transplant has taken away for me, including people. 

That's it for now. No big news. No news is good news in my book. 

Oh I started selling Avon! If you'd like to order from me, you can do so at www.youravon.com/kprager

-Katie

Five Year Flashback

On this exact day 5 years ago, I graduated from high school & was also begging Natalie to keep singing the Climb to me. I'll never forget that night! The past 5 years have been full of every emotion you could think of.. I've done some things that I didn't even think I'd ever do. I have lived in different cities, got a college degree, got married, lost a sister, got 2 puppies, killed my pet fish Sushi, spent way too much time in the hospital, buried my Granny, spent time taking care of my dad after his horrible wreck, cried over lost CF friends, traveled, made relationships with people that mean so much to me, bought a house, bought Jake his first legal drink, became closer to my brother, mended broken relationships, and basically everything in between. When Dalton and I started dating and planning to meet, it was against our doctors wishes but we still did it. I told him that I'd rather live 5 years with him than 50 with someone I didn't have much love for. It will be 5 years on August 1st that I sent him that first message and now I'm waiting for my life to be saved (great timing God!). All in all, the past 5 years have been the busiest time of my life. I think it's best that I start knocking things off my bucket list. There are still so many things I want to do. This goes to everyone who has spent the last 5 years praying for me, praying with me, supporting me, loving me, and never giving up on me. Dalton and I are so blessed to be at a CF center that cares about us and nurses that love us and treat us like family. You guys mean the world to me. The only thing I have to say now is bring on the next 5 years. I'll never stop fighting and I'll never stop living. -Latie 💕🌹☀️

Hospital Update

 

Here is a little update for our followers.. Been in the hospital for over a week. Hope to go home sooner rather than later. <3 -Katie

*Insert Disease Name Here*

So for a while now I guess we have been on the path to the point of where we currently are. The point where it actually comes out of a doctor or nurses mouth that really hits you. This can't be my life, is it? I'm talking about when someone tells you that you have 'end stage -insert disease name here-'. In the case for us, we are at end stage Cystic Fibrosis. It is even weird to type out. I never thought I would come to the point where those words would become my everyday life, but they are. End stage Cystic Fibrosis. You know what that means? That doesn't mean its the end, it means that it's time to work even harder to see the next day.