*Insert Disease Name Here*

So for a while now I guess we have been on the path to the point of where we currently are. The point where it actually comes out of a doctor or nurses mouth that really hits you. This can't be my life, is it? I'm talking about when someone tells you that you have 'end stage -insert disease name here-'. In the case for us, we are at end stage Cystic Fibrosis. It is even weird to type out. I never thought I would come to the point where those words would become my everyday life, but they are. End stage Cystic Fibrosis. You know what that means? That doesn't mean its the end, it means that it's time to work even harder to see the next day.

Growing Up

I am so glad that my parents never sheltered me while I was growing up. In fact, I didn't really tell anyone I had CF unless they asked or needed to know and well now that it's obvious something is wrong (via the oxygen tank) it's hard to hide. Some parents shield their Cf kids from things and it's a shame. I lived a normal life and still do! I did what I

wanted in regards to sports, hanging out with friends, etc. I truly feel sorry for the children whose parents pity them and use Cf as a crutch. If anything my mom and dad taught me to be a stronger person because of it and never let it get me down. I will admit, and this is hard for me, there was a time when I was really sad because of how sick I was getting and I was living out of state and nowhere near my parents and I was a mess. Now that I'm home I spend my time trying to be closer with my parents and let them know how much I truly appreciate them. My mom and dad have always been my two strongest supporters and I can honestly say that without their push I wouldn't be half the person I am today. They are amazing and I'm so blessed that they didn't pity me or allow me to feel sick. I am who I am because of them and wouldn't change a thing. I Love you mom and dad! -Katie, Kate, Sissy, Princess

Just Waiting

The one thing I absolutely hate about social media is seeing how people my age, the people I grew up with are out ENJOYING their 20's. Yes, I'm jealous. Yes, I'm envious. Of course there's nothing I can do about it and allowing myself to feel sorry for myself is the last thing I'm going to do. I'm missing out on 'the best years of my life' and I'm not gonna sugar coat it, it sucks. It's so hard watching people go out and have fun while I sit at home.. But don't feel sorry for me. One day soon I'll have my new lungs. I'll be able to start 'the best years of my life' when my new life starts and that begins with new lungs! I can't wait to take that first deep breath! No oxygen, just the air around me! And after that, Dalton and I will definitely have the best years of our lives filled with things we can't even do in our wildest dreams. That's a promise. -Katie

Oops!

So I promised a post last night and I didn't get there! But here I am tonight. Better late than never! 

So I met with the guy about our TSHIRTS and I'm so excited about them! Not sure when they will be done but we should get a few here within the next week. I walked over a half mile tonight! It is so hard to get back in that habit and my lung is killing me right now but for someone on oxygen that is a huge step!!! I'm so proud of myself! Marley and Bo have been keeping me busy! They love to play every morning around 9 am! :) Lots of love! And thanks for reading! -Katie

Daltons Day!

In light of us being sick, I decided that I wanted to celebrate being out of the hospital and just give Dalton a day in which we could do whatever he wanted. Nothing was off limits! So, we went to Lexington and ate lunch at Olive Garden and then went to a gun shop! He had a lot of fun but we were both so tired after! We got home around 4 and have been laying around ever since! He is now eating dinner from Lees. That boy eats more Lees than anyone I know and I really don't like the smell of it! But, whatever he wants! Here are a few pictures! We are going to go through pictures tonight and watch movies. I love him! -Katie