See ya ICU!!

Dalton is finally out of SICU!! He is on our regular floor now, 7 South Tower! I am so happy! I was able to go over and spend a few hours with him! I am happy to report he was doing and looking good. His surgical site looks really good. Got his catheter out. Dr said that discharge is planned for Friday! Yayayay!!!

I had an appointment today. Not bad but not awesome. PFTs down a little, not sure why. Continue on oral antibiotics. I am getting the Tobi podhaler!!! Which is a new way of taking a medicine that normally takes about 10-15 minutes inhaled and it takes it down to about 30 seconds. Weight stable. Going to switch out my feeding tube down to a small version called a Mickey button in a couple of weeks. Still active on the transplant list. 

Both just keep on keeping on. Thanks for your love and prayers! -Katie

Update

I was just thinking that I'd give an update on Dalton. :) 

Today was an alright day. I was over there from about 12-6. He had to have some blood because his counts were low which we don't want but it's done now. His surgery site is looking good. Still some stuff draining out. Not sure when they will take the drainage out. He is trying to ween down his pain meds, they're doing good with that. His anxiety is a little increased but that is no surprise. He is doing so good and he's being so strong. I just love visiting him. He is still in the SICU (Surgical Intensive Care Unit). They are waiting on a bed to become available for him to move up to the regular floor, hopefully that will happen tomorrow. I can't think of anything else to report. Just please keep praying and don't stop.. We need all you can give.. -Katie

Dalton..

He looks so good this morning. He looked at me and squeezed my hand...

He got out of surgery sometime while I was asleep last night. The past 24 hours have been a blur to me and I'm sure to Dalton. We will get through this and more. This is just the beginning. Will explain more later. -Katie

Dalton

As you all know, Dalton had surgery on his stomach a few days ago. Just as we were about to leave, they removed his staples. Well all of a sudden he looked down and his intestines were hanging out of his belly. So we are still here and won't be leaving tonight. I'm discharged but I will be staying here with him. This is a little set back. Will be sewn up soon. I will keep you posted. -Katie