Update from Missouri

So Dalton and I came to Missouri last Thursday for a few days to visit some people for the last time for a while and to also have our Pre-Transplant BBQ! The BBQ was a huge success and we had so many supporters there!!! We also sold tons of t-shirts and support bracelets! It feels so great to have so many people who love us!
Saturday night I also had a surprise graduation party! I was excited and couldn't believe it!
We had family pictures done with everyone and it was great. I'm so glad we we were able to get family pictures with Dalton's cousins, Kayla and Hannah, because after transplant we won't be able to be with them because they have CF. The fact of the matter is we won't get to hang out with anyone; CF, pre-transplant, or post-transplant. This is one thing that hurts me the most. Three of my best friends have CF and will be pre-transplant. Kayla, Hannah, and Lauren have been my go to girls. I can always trust and lean on them for anything. We have so many great memories that I will always cherish and I love them all so so much. I'm so glad they were all there to send us on our way on Saturday night. They are the three strongest ladies I know and I'll always be right here just a call or text away. I love you three to death! <3
I'm making myself sad because this weekend really hasn't been the easiest. A lot of things just coming up now that we are getting close to transplant but only God knows the plans he has for us.
Thank you to everyone for your support, love, concern, and donations. We love you! Will be going back to Kentucky first thing tomorrow morning. -Katie

Road Trip!

Hello Monday

Today started off just like every other day pretty much with blood draws at 9:00 am! There really is nothing new to report about anything. We are really just playing the waiting game and trying to get out of the house as often as possible. My mom is taking us to dinner later on so that should be fun but those are the only plans we have for the day. Tomorrow Dalton has an appointment in Westchester, OH (to be honest, we have never even heard of that place) to meet with a sleep study 00doctor so we can finally get going on this bipap deal. We are both still on IVs and it looks like we will miss pulm rehab again tomorrow because of his appointment. I think it will be okay, we will do enough running around tomorrow without rehab! I am still working on bracelets and we now have our purple 'Dalton and Katie' bracelets in. If you would like one, they are $3. I will tell you how to get one at the end of the post. Yesterday at church they took up a special Love offering for Dalton and I. I am seriously so amazed at how many people show Dalton and I such love and compassion. Everyone is always praying for us and we can really feel all of the support we have from everyone. We honestly wouldn't be able to go through this without everyone and we feel so special to have so many people care. I hope everyone has a happy Monday!! Remember, you woke up this morning, it is going to be a good day.
-Katie

*If you want an awesome Dalton and Katie Love Conquers All bracelet, message me your name and address at pragercf@gmail.com or on my personal facebook page after you donate $3 to www.gofundme.com/dkprager. (I think the min is $5 but the extra $2 helps pay for shipping on all of these orders). If you want more than one just let me know in the message and each bracelet is $3!





Hard Work DOES Pay Off

I graduated high school in 2009 and since that time, my hospital visits have become a lot more frequent. I started at Maysville Community College in 2009 and when I moved in January 2010, I transferred to St. Charles Community College. It takes most people about two years to graduate from a community college with an associates degree and most decide to continue their education and pursue a bachelors degree. I have been in and out of the hospital several times the past few years and have had to drop classes, have gotten behind, worked extra hard to get caught up, and done everything I could do to make sure I could cross off 'Graduate from College' on my bucket list. When we moved back to Kentucky last May, I found out what classes I would need and how long it would take to graduate. I found out that I could graduate by next spring if I crammed a few extra classes in. Well, after a couple of crazy semesters; in and out of the hospital several times, getting used to 24/7 oxygen, transplant evaluation, and pulmonary rehab, I can officially say that on May 10, 2013, I will be able to cross off 'Graduate from College'.
I am so happy with myself and although it is just as Associates degree, no one knows how hard I have worked for this. I have taken piles of classes, worked extremely hard when I felt good and when I didn't, and done everything in my power to accomplish this goal.
I want to give a special thank you to my advisor, Wendy Noble. She has worked with me to make sure I have everything done in time for graduation. She has been amazing to work with and has really helped me through this semester.
See ya at graduation!!!
-Katie

CF Clinic

Dalton and I had our CF appointment in Cincinnati yesterday. There really were no changes at all. Our doctor added some medicine to our daily routine, but no big deal. PFTs the same. Still on IVs and probably will be for another week or so. We have an appointment with the ENT doctor on May 7, as well as a CF appointment. We are still dealing with insurance issues for transplant. Hopefully this gets dealt with tomorrow and we can move forward with this process. We are going to St. Louis next week to visit and then probably move to Pittsburgh. I am not quite sure how this is going to go but it will work out!
Dalton and I missed pulmonary rehab today because of lab draws so we went to the bowling ally. We were the only ones there, imagine that on a Thursday afternoon. Will keep you posted if anything changes. -Katie