Update

Dalton is feeling a little bit better. 

I was admitted yesterday. 

-Katie

Job

So, my blog has mostly been about health but I decided I would like to expand the topics that I talk about. I mean, in all honestly, our life pretty much revolves around health at the moment, but only if we let it and I am tired of letting that happen! So.....

I really want a job! I keep looking into the sell things from home deals. I just feel like it's a scam and I can't imagine spending money to start something and then never even make my money back. So, I have been debating on that a lot. Another problem with those things is that there are SO many people who sell things that it is hard to find people to buy from you. I'm really not sure if it would be worth it to sell anything or not. Any input? I just really want something to do to make money. I am tired of getting donations and not doing anything to get them. I hate donations honestly. That is mainly why I started making bracelets, got t-shirts, etc. So yeah.. I have always been independent when it comes to that sort of thing so being in this predicament is not fun at all.

I am going to see Dalton tomorrow. He said he is starting to feel a bit better. Bad news is that his score is back down to 41. They messed it up the other day and so it went back down. :( boo. I wish he would get his lungs soon. I am ready to see him healthy <3

-Katie

List Update!

 

If you would like to send Dalton a card go to  https://ecards.upmc.com/
Click on the card you would like
Under the hospital tab click on UPMC Presbyterian and you can leave the room number blank.. Just be sure to include his name!!


Also, to make a comment on my blog, go to the post you'd like to comment on. At the end of the post it will say NO COMMENTS or 1 COMMENT, ETC. Click on that and you will be able to make your comment.
Thanks! -Katie

Happy Sunday

Today is Sunday! Let us be glad and rejoice! I will be spending the day trying to be productive. Having Sunday lunch at my mamaws is my favorite tradition! Have a great day everyone! ❤️ -Katie

Keep on Waitin'

So I just have an update on Dalton..

He has been having severe chest pain for the past week/week and a half. He thought he had a broken rib from coughing so hard because of his allergies. Thursday he called CF clinic and told them he was in pain and they suggested he go to the ER. He had a massage scheduled to work on his muscles this morning and if it was still hurting he'd go to the ER for x-rays. Today it got to the point where he needed pain medicine and it was unbearable. So he went to our local ER and got the tests done (x-rays, blood work) and his x-ray didn't reveal a broken rib, it did however reveal that there are two ribs rubbing against each other because a muscle is pushing one rib into another. So he got pain meds to take care of that. His white blood cell count was also elevated and so Dr. Pilewski felt like it was best that he was transported to Pittsburgh. So, he is in Pitt once again on 7 south tower in Presbyterian hospital. I will update tomorrow once I know more. But for now all I know is that he's safe and sound in his room. 

I would really like if you all that read the blog do me a little favor. We are both always in and out of the hospital but it's always nice to know that someone is thinking of us. Could you please send Dalton an e-card? All you have to do is go to:

https://ecards.upmc.com

Click on a card you want to send

Type in Dalton Prager

Just leave the room number blank

And he is in UPMC Presbyterian

I know this would brighten his stay! Thank you everyone for all your love and support. New shirts coming soon! Stay tuned!!! -Katie

Update 3/13/2014

I love doing Video Updates! They are just so much easier to talk and tell you guys what I am doing or thinking than typing a lot.. Love to you all and thank you for reading! Please comment if you read. Would love to see who still reads after all this time. Sorry it is so long, I got carried away! And also sorry my voice is so deep and raspy, crazy weather!!! -Katie

Update

Yesterday went well. Dalton was having an off day to start off with but he is doing better today! They kept him on all ivs for another week, no big deal. Slight decrease in pfts. At this point in the game those numbers don't matter anymore. Will update his LAS score which will move him up on the list!

I had a great appointment. Probably the best in 6 months. I blame it on being active in the gym and getting out of the house more. I think it's really helped. Oh and eating ice cream with my 2 year old little cousin Alivia probably helped me put on a couple extra pounds! I am off all ivs. We both go back in a month. 

Thanks for all the love and support! Here's to kicking cf in the ass harder than ever!!! -Katie

VLOG :) Enjoy!

Just a little update for you guys in the form of a video :) Hope you enjoy and sorry for not keeping this up to date.. Will definitely try to do better! -Katie